Transitioning as a newly-diagnosed cancer patient to a survivor is a complex process. Long-term health risks are top-of-mind and the fear of cancer returning never fully fades. Many patients report experiencing feelings of fear, dread, distress, anxiety, depression, suicidal ideation, isolation and loneliness even when they are surrounded by loved ones who support them. Many resources are raised and expended on cancer awareness, prevention, and research, but little is being done to address the physical, emotional and psychosocial effects of cancer. With more than 16.9 million Americans alive today with their own personal cancer survival story, there is much work to be done to support this growing community.
Cancer Kinship seeks to help patients adjust to diagnosis, and life after treatment as survivors and thrivers. We believe that our programs and services will empower the cancer community to take control of their health and future, resulting in the overall cancer community – our mothers, fathers, brothers, sisters, neighbors, friends – living longer, happier and more impactful lives.
To empower cancer community to confidently face the disease through peer mentorship, survivor empowerment and education, socialization, and community resource navigation provided by caring and compassionate volunteers and staff.
A community where anyone affected by cancer–no matter where they stand in their journey– are able to brave the storm together, confidently and fearlessly, resulting in improved quality of life and increased long-term survival rates for all.
Cancer Kinship Executive Director Yolanda Origel (“Yoli”) is a 15-year survivor of Stage 3 breast cancer. After her initial diagnosis, Yoli underwent 16 weeks of dose-dense chemotherapy, a bilateral mastectomy, seven weeks of daily radiation treatments, a latissimus dorsi flap reconstruction surgery with tissue expanders and many subsequent reconstructive surgeries. Additionally, she carries the BRCA 1 breast cancer gene, and had a preventative hysterectomy to decrease her heightened risk of ovarian and other gynecologic cancers. This is her story.
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The first time I heard the word “cancer” I was just 7 years old. My mother was diagnosed with breast cancer and valiantly fought until she passed away at the age of 42 from stage 4 metastatic terminal cancer that spread to her brain.
Watching her fight the biggest battle of her life, while being a full-time mom to 7 children and a loving wife to my father, was inspiring for me even at that early age. But as a child, I didn’t fully understand what she was going through: the fear she undoubtedly experienced; the physical pain from chemotherapy treatments that were much harder on a person’s body than they are now; and the sadness she must’ve felt knowing that she would be leaving behind her young children to be raised by a single father.
I wish the adult version of myself, the cancer survivor, could’ve been there to provide my mom a listening ear, a hand to hold and a shoulder to cry on during her darkest days. I wouldn’t have been able to save her from the vicious cancer that ultimately took her life, but she would’ve had someone nearby who understood what she was going through.
Since my mom passed away in 1986, and even since my own diagnosis in 2007, there have been significant advances in cancer treatments and surgeries and the number of cancer-related deaths are lower than ever before. But nevertheless, my family was impacted once more when my youngest sister was diagnosed with Stage 4 metastatic breast cancer in 2014 that had spread to both breasts, bones, lungs, and brain. She died when I was seven years into my own cancer survival.
After she died, I experienced survivor guilt and a profound sadness that prompted a deeper examination of my own beliefs and reason for my survival. I soon realized that the level of care and support that I had provided my sister allowed her to die with dignity and utmost care. I would not have been able to support her at the level that she needed had I not gone through my own cancer experience. My knowledge allowed me to be an active participant and decision-maker in her care planning meetings with her physicians and nursing staff.
I wish the adult version of myself, the cancer survivor, could’ve been there to provide my mom a listening ear, a hand to hold and a shoulder to cry on during her darkest days. I wouldn’t have been able to save her from the vicious cancer that ultimately took her life, but she would’ve had someone nearby who understood what she was going through. Human connection can be a great healer. Additionally, socialization amongst survivors can be an empowering experience and the camaraderie that a cancer patient can experience when they meet and connect with fellow survivors can be life-changing and enhance their quality of life.
As a survivor, it has been incredibly fulfilling and an honor to serve as a support person for patients who are just entering their cancer storm. I never wanted to be an expert in cancer survival, but I was thrown into the storm and I have learned a lot about cancer throughout my life.
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Cancer Kinship EIN: 874802655
307 Placentia Avenue, Ste. 203, Newport Beach, CA, 92663, US