Global Genes
Global Genes   
Diseases and Disease Research | Aliso Viejo, CA |
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About Us

Global Genes™  is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations.

Our Mission

To Eliminate the Challenges of Rare Disease.

We build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.

RARE is Everywhere

Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally.  Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes.  The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.

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