Global Genes™ is one of the leading rare disease patient advocacy organizations in the world. The non-profit organization promotes the needs of the rare disease community under a unifying symbol of hope – the Blue Denim Genes Ribbon™. What began as a grassroots movement in 2009 , with just a few rare disease parent advocates and foundations , has since grown to over 500 global organizations.
To Eliminate the Challenges of Rare Disease.
We build awareness, educate the global community, and provide critical connections and resources that equip advocates to become activists for their disease.
RARE is Everywhere
Rare diseases affect 1 in 10 Americans, 30 million people in the United States, and 350 million people globally. Over 7,000 distinct rare diseases exist and approximately 80 percent are caused by faulty genes. The National Institutes of Health estimates that 50% of people affected by rare diseases are children, making rare diseases one of the most deadly and debilitating for children worldwide.Global Genes has not yet activated their merchant account with Givsum. Your donation will go to the GIVSUM Foundation who will issue a check to Global Genes ( less applicable fees ) as a grant within 30 days. You will get a tax receipt for the full amount of your donation from the GIVSUM Foundation, which you may use for your tax purposes.